Wednesday, May 1, 2013

Continued Assessments for Stan Cassidy Rehabilitation Center

Myotonic Dystrophy - Our Family's Journey

Together We're Stronger

The one day the boys were seen at the Stan Cassidy Center, in March was not enough time to complete the assessments the team needed to help the boys go forward with this condition to achieve a positive outcome.
So, over the next few weeks, in preparation for a couple of intense days at the Stan Cassidy Rehabilitation Center, the boys will be seen by a number of medical professionals in preparation for this visit.
So this will mean time missed from school along with coording these appointments so  they're is no over lap in times and they all get completed, in time, for the team to be able to view  the results before the visit next month.
We look forward to several busy weeks.

For more information on Myotonic Dystrophy please follow this link:


The material provided on this site is designed for information and educational purposes only. The materials are not intended to be a self diagnostic and/or self treatment tool. I encourage you to use this information as a tool for discussing your condition with your health practitioner.


  1. I hope the appropriate people are able to see the boys in an orderly fashion so that the maximum results are obtained. Am going through the same situation now with my granddaughter. Thnak for these posts.

    Patricia, Sugar & Spice & All Things ? Nice

    1. I really like to be there at the SCRC, to get a sense of what is going on with each of the boys and what is being planned for them. I hope things go well for your granddaughter, too.

  2. It is so wonderful that we have all of these resources at our fingertips, what a God send in situations like that of your grandsons. Let us know how everything goes!

    1. At time like this I say,'Thank God we live where we do! I will certainly be adding updates as they occur.