This is the story of our family's journey from the first diagnosis of Myotonic Dystrophy, onward. As with any journey there are the ups and downs and so it was and will be with us, too.
My plan is to keep a positive spin on dealing with this life long journey.
I'd love to have you join us on our journey. Maybe you can learn a little from us. We can certainly learn from others.
The one day the boys were seen at the Stan Cassidy Center, in March was not enough time to complete the assessments the team needed to help the boys go forward with this condition to achieve a positive outcome.
So, over the next few weeks, in preparation for a couple of intense days at the Stan Cassidy Rehabilitation Center, the boys will be seen by a number of medical professionals in preparation for this visit.
So this will mean time missed from school along with coording these appointments so they're is no over lap in times and they all get completed, in time, for the team to be able to view the results before the visit next month. We look forward to several busy weeks.
For more information on Myotonic Dystrophy please follow this link:
The material provided on this site is designed for information and educational purposes only. The materials are not intended to be a self diagnostic and/or self treatment tool. I encourage you to use this information as a tool for discussing your condition with your health practitioner.