Then unexpectedly her water broke at home and she went into premature labour. Her son was born after hours of labour, by Cesarean section. He was 8 weeks early, weighing only 4 lbs 3 oz, and kept on standby assisted breathing and given Nasogastric Tube tube feeding in the Pediatriac Intensive Care Unit of our local hospital. He was too weak at birth to take a bottle. My daughter pumped breast milk to give her son the best chance he had to fight infections with this precious milk, and for Christin to contribute to his well being.
It was through the diligence of the medical team, having remembered Brian's symptoms at delivery, and now seeing similarities in his newborn brother, that alerted them to the fact that this may be a genetic disorder.
To learn more about this disorder, please go to Muscular Dystrophy Canada