|Together, we're stronger!|
Our family has been affected by Myotonic Dystrophy, for many years. I've been wanting to blog about it for some time now, but didn't know how to begin.
There is way too much information to cover in one post. So, to make it easier for me...and easier for everyone reading to understand, I have decided to break it up into a series of weekly posts.
As we travel this journey of learning together, I would like to think of this blog as a place where, if any others are affected, they too can offer comments and voice their concerns and suggestions on families dealing with this condition.
All comments and thoughts are my own. Resource information will be linked to it's source.
To start I'll include a definition of Myotonic Dystrophy from the Let's Make Muscles Move site, here in Canada.
To learn more about this disorder please go to: Muscular Dystrophy Canada
Myotonic Dystrophy, also known as Steinert's disease, is the most
common form of muscle disease, affecting approximately one person in
8,000 worldwide. It is a disorder characterized by progressive muscle
weakness and wasting and by myotonia (difficulty in relaxing the muscles
after they have been contracted). It is a multi-system disease, typically
involving a wide range of other tissues as well as muscle.